We are pleased to announce that the Bolton Pulmonary Fibrosis Support Group has been accepted as an Associate Member of The European Idiopathic Pulmonary Fibrosis and Related Disorders Federation (EU-IPFF). Obviously we are delighted to to have been accepted as an Associate Member of this internationally recognised body, thereby increasing our support for Idiopathic Pulmonary Fibrosis (IPF) internationally but our own members also.

Who Are The EU-IPF Federation

The European Idiopathic Pulmonary Fibrosis and Related Disorders Federation (EU-IPFF) is a non-profit organisation that brings together European national patient associations committed to defending their vision of equal access to treatment and care for all IPF patients, regardless of geography, socio-economic status or age. Our common view has encouraged us to officially establish the first European IPF and other related disorders federation in July 2016.

Our commitment and ambition are grounded in one of our key achievements: the development of the European IPF Charter, which was launched in the European Parliament in September 2014. The Charter lays down the rights of IPF patients and concrete policy recommendations that, if adopted, would ensure improvements in patients’ quality of life whilst supporting efforts to find a cure.

We aim to serve as a trusted resource for the IPF community by raising awareness, providing disease education, advancing care, and supporting research for IPF whilst defending the interests of IPF patients at European level. We fight for equal access to treatment, information and ensuring exchange of information between national patient groups.

Each year, during IPF World Week, IPF patient associations across the world join forces to raise awareness of IPF, call for better access to care, and bring hope to those living with the disease. If you would like to know more about the EU-IPFF and the work they do download their leaflet EU-IPFF Breathing Hope or visit their website