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Bolton Pulmonary Fibrosis Support Group …

There is very little information available about Idiopathic Pulmonary Fibrosis (IPF) especially for those newly diagnosed. The Bolton Pulmonary Fibrosis Support Group was setup by men and women who have Idiopathic Pulmonary Fibrosis themselves, some are on the register waiting for a Lung Transplant. They along with their family members, friends and carers have first hand knowledge of the condition, how it affects them; their daily lives their families. They have come together as a group to provide support, help and understanding to others with this incurable debilitating condition.

The founding members were the first group to be invited to the newly funded Idiopathic Pulmonary Fibrosis rehabilitation course, which started in September 2017 and continued over a period of eight weeks. The course was very informative about Idiopathic Pulmonary Fibrosis, how its affects individuals, how it is diagnosed and managed. Different ways to adapt to life, living with this, at present, incurable condition, what help is available with regards to support, self help etc. From day one  every one in the group got on so well, that the support for each other, the fun, banter and laughter just continued to grow. At the end of the eight weeks, we all said what are we going to do each Monday and Thursday, now that the course has come to an end, we must all keep in touch.

It was then that Michaela, one of the specialist respiratory nurses, introduced us to Lorna McLaughlan from the charity Action for Pulmonary Fibrosis. Lorna came up with perfect solution to allow us to remain together as a group and that was to set up a support group of our own, affiliated to Action for Pulmonary Fibrosis, as they say the rest is history, Bolton Pulmonary Fibrosis Support Group was born.

Action for Pulmonary Fibrosis

Great Team

Here are some of the Royal Bolton Hospital Consultants Physiotherapists,Nursing Staff who are the Medical Support Team of the Bolton Pulmonary Fibrosis Support Group

Rebecca Worswick

Rebecca Worswick Specialist Respiratory Nurse Royal Bolton Hospital

Honorary Member Dr Ellie McCann

Palliative Care Specialist Dr Aurelia (Ellie) McCann Medical Director / Consultant Physician Bolton Hospice

Dr Aurelia (Ellie) McCann Medical Director / Consultant Physician Bolton Hospice

Palliative Specialist Dr Aurelia (Ellie) McCann Clinical Director/ Consultant Physician Bolton Hospice

Dr Gareth Hughes

Dr Gareth Hughes Consultant – Intensive Care and Respiratory Medicine

Dr Gareth Hughes Consultant - Intensive Care and Respiratory Medicine

Dr Hughes is a Consultant in Intensive Care and Respiratory Medicine, joining the trust in January 2019, having completed his training in the North West. He graduated with a bachelor of medicine, bachelor of surgery degree from the University of Manchester in 2007. He has undertaken further postgraduate studies in workplace-based postgraduate medical education and health care ethics and law. He is also an Honorary Senior Lecturer at the University of Manchester in the division of Infection, Immunity & Respiratory Medicine. Special Interests and Research Interstitial lung disease, acute respiratory distress syndrome, difficult weaning and long-term ventilation. Publications Hughes G, Toellner H, Morris H, Leonard C, Chaudhuri N. Real World Experiences: Pirfenidone and Nintedanib are Effective Well Tolerated Treatments for Idiopathic Pulmonary Fibrosis. Journal of Clinical Medicine 2016; 5(9). Pii: E78. DOI: 10.3390/jcm5090078 Toellner H, Hughes G, Beswick W, Crooks M, Donaldson C, Leonard C, Forrest I, Hart S, Major M, Simpson J, Chaudhuri N. Early clinical experiences with nintedanib in three UK tertiary interstitial lung disease centres. Clinical and Translational Medicine 2017; 6:41. DOI 10.1186/s40169-017-0172-3 McGrath B, Doherty C, Moore JA, Bates L, Hughes G, Atkinson D, Donaldson HE. The role of Hi-Fidelity simulation in designing emergency airway management algorithms: The experience of the UK National Tracheostomy Safety Project. BMJ Simulation & Technology Enhanced Learning. Published Online First: 14 December 2017. DOI 10.1136/bmjstel-2017-000267 Dr Gareth Hughes works in the following services: Critical Care Critical Care at the Royal Bolton Hospital comprises an eight-bed intensive care unit and a ten-bed high dependency unit which care for seriously ill patients. Both units are staffed by critical care trained nurses and covered by doctors trained in intensive care medicine. Other specialists from across the Trust provide input where necessary. We care for almost 1,400 patients a year making Bolton the third busiest critical care unit in Greater Manchester. Respiratory The award-winning respiratory service provides inpatient and outpatient services to all patients with respiratory disease, including chronic obstructive pulmonary disease (COPD), asthma, tuberculosis and lung cancer. The respiratory service offers full hospital services, supported by colleagues from The Christie and Wythenshawe and by a team of specialist nurses which provides a seven-day service to both inpatients and outpatients, as well as home visits as required.

Michaela Bowden Respiratory Specialist Nurse The Royal Bolton Hospital Health Trust

Respiratory Specialist Nurse The Royal Bolton Hospital Health Trust

Michaela began her nursing career in 1983 and came to the then Bolton District General Hospital (now the Royal Bolton Hospital) on a ward caring for the elderly. After a spell on Nicholson Ward at Bolton Royal Infirmary, she returned to the General on the Medical Assessment Unit and in 1998 joined the respiratory service, where she has been ever since.

Theresa Garfoot Lead ILD Pharmacist

Pharmacist Theresa Garfoot

Interstitial Lung Disease Specialist Pharmacist

Theresa Garfoot is an ILD specialist pharmacist working at Manchester University NHS Foundation Trust (MFT). MFT is one of only 2 specialist ILD centres in the North West able to prescribe antifibrotics for patients with idiopathic pulmonary fibrosis (IPF). She has spent 2 years establishing a new pharmacy service to the ILD team at Wythenshawe Hospital and led the development of immunosuppression clinics for ILD patients. The service involves the counselling, prescribing and monitoring of these patients. She has established shared care for immunosuppression, better streamlining the process for these patients who are referred from all over the North West, Cumbria and North Wales. Her role also includes clinical assessment of new ILD referrals on a day-case unit and providing counselling on treatments, choice of medication, and providing support and monitoring. Theresa graduated in 1998 with a BSc (Hons) in Pharmacy from The University of Manchester and qualified in 1999 following a pre-registration year at Withington and Wythenshawe Hospitals. In 2001 she then went on to complete a clinical pharmacy diploma at Belfast University. She has an extensive respiratory background and worked for several years as respiratory pharmacy lead for the trust. She previously provided a service to the respiratory wards and directorate, managed the respiratory pharmacy team, completed the non-medical prescribing course in 2015 and began specialising in ILD in 2016.

Dr Nazia Chaudhuri

Dr Nazia Chaudhuri

Dr Nazia Chaudhuri is the joint clinical lead of the ILD unit in Manchester. I have been successful in developing local, regional and national patient care through the development of ILD networks and my involvement in key national ILD groups (British Thoracic Society (BTS) ILD registry and BTS ILD Specialist advisory group). I am an active researcher, being PI on multiple research trials in IPF and am a co-investigator on a Euro 12 million multicountry project looking at novel imaging biomarkers in drug induced ILD.

Helen Morris Wythenshawe Hospital

Helen Morris Wythenshawe Hospital

Helen Morris Interstitial Lung Disease specialist nurse at UHSM Wythenshawe Hospital

Helen Morris is an Interstitial Lung Disease specialist nurse at UHSM. Wythenshawe Hospital She graduated from the University of Salford with a nursing diploma in 1998. She worked at University Hospital South Manchester in acute medicine on a general medical ward and a medical assessment unit. She developed an interest in respiratory medicine during this time and began work on the acute respiratory wards at UHSM in 2001 as a senior staff nurse. She studied for her degree whilst working on the respiratory wards and became ward sister.

Tom Allerton Physio Therapist

Tom Allerton

Specialist Respiratory Physiotherapist and Principal Service Lead - Urgent Care Therapies at Royal Bolton Hospital

Specialist Respiratory Physiotherapist and Principal Service Lead - Urgent Care Therapies at Royal Bolton Hospital

This is a picture of Dr Kamal Ibrahim

Dr. Kamal Ibrahim

Consultant Respiratory Physician - Department of Respiratory Medicine, - Royal Bolton Hospital

Professional Background Dr Kamal Ibrahim trained at the University of Khartoum and joined Bolton NHS Foundation Trust in 2007. Previously, he has trained at hospitals in the North West and Yorkshire, the London Chest Hospital, the Royal London, St Bartholomew's and the University College of London Hospital. Dr Ibrahim is Bolton NHS FT Lead for COPD and pulmonary rehabilitation as well as pleural diseases. Special Interests and Research Special interests include: COPD (chronic obstructive pulmonary disease) and pleural diseases - including pleural ultrasound and more recently medical thoracoscopy which is currently performed by only a few hospitals in the North West region. Research interests include: Anaemia in COPD Publications Dr Kamal Ibrahim has invented and patented a new chest drain system for which he received a British Medical Association award in 2005.

Dr Raza Respiratory Consultant

Dr. Saiyyid Raza

Consultant Respiratory Physician - Department of Respiratory Medicine, - Royal Bolton Hospital

Professional Background Dr Raza gained an MBBS in Pakistan at the Punjab University. He then carried out his postgraduate medical training in Pakistan and the UK. He passed the MRCP (UK) examination in 1986 and then carried out research in the Occupational Lung Disease Unit, Wythenshawe Hospital and submitted his thesis for award of MSc from Manchester University. Higher medical training was carried out in Respiratory Medicine Units in the Northwest. Dr Raza took up his consultant post at Bolton NHS Foundation Trust in 2002. Subsequently he was awarded Fellowship of the Royal College of Physicians of London (FRCP). He is a professional member of the British Medical Association, the British Thoracic Society and the Medical Defence Union. Special Interests and Research Dr Raza has a special interest in interstitial lung disease and conducted research into occupational lung disease.

Bolton Fibrosis