For people living with the terminal disease Pulmonary Fibrosis, the most important thing is to exercise and expand their lung capacity, thereby in as much oxygen as possible. Oxygen is vital for every organ in the body to function fully. Oxygen reaches your lungs after breathing and then travels throughout your body and reaches every cell in the body. Oxygen is vital for oxidizing food for releasing energy and heat, which is required for performing daily tasks of life. It is estimated that oxygen constitutes around 65% of your body mass, and is responsible for regulating most of the body functions. Pulmonary Rehabilitation exercises are designed and proven to improve and maintain a person’s oxygen saturation, thereby maintaining general health and quality of life. We at Bolton Pulmonary Fibrosis Support Group were able to secure a National Lottery Community Fund Grant, to be able to offer our members regular weekly Pulmonary Rehab sessions at the Wellbeing Hub at Bolton Hospice. Helping and encouraging them to be able to live a better quality of life.

For people living with the terminal disease Pulmonary Fibrosis, the most important thing is to exercise and expand their lung capacity, thereby in as much oxygen as possible. Oxygen is vital for every organ in the body to function fully. Oxygen reaches your lungs after breathing and then travels throughout your body and reaches every cell in the body. Oxygen is vital for oxidizing food for releasing energy and heat, which is required for performing daily tasks of life. It is estimated that oxygen constitutes around 65% of your body mass, and is responsible for regulating most of the body functions. Pulmonary Rehabilitation exercises are designed and proven to improve and maintain a person’s oxygen saturation, thereby maintaining general health and quality of life. We at Bolton Pulmonary Fibrosis Support Group were able to secure a National Lottery Community Fund Grant, to be able to offer our members regular weekly Pulmonary Rehab sessions at the Wellbeing Hub at Bolton Hospice. Helping and encouraging them to be able to live a better quality of life.

This the first in a series of webinars on the subject of Pulmonary Fibrosis produced by Action for Pulmonary Fibrosis and supported by Boehringer Ingelheim. This first webinar in this series is presented by Dr Simona Hart Simon is Reader in Respiratory Medicine at Hull York Medical School/ University of Hull and Consultant Physician at Hull University Teaching Hospitals NHS Trust. He graduated from Edinburgh University and trained in respiratory and general medicine in south-east Scotland. PhD in neutrophil and macrophage biology in the MRC Centre for Inflammation Research, followed by an MRC Clinician Scientist fellowship. Lead clinician for the Hull interstitial lung disease and Sarcoidosis services. Participates in the acute general medicine rota at Hull Royal Infirmary. Research interests include the biology of pulmonary fibrosis, interstitial lung diseases, and sarcoidosis.

This is a poignant open and honest account of what challenges people face caring for someone with a terminal disease like Pulmonary Fibrosis. People living with this devastating disease, for which there is no cure, with a life expectancy of 3 - 5 years. Clive and Sue are lucky that they are able to be open and honest with each other about how Pulmonary Fibrosis impacts on their lives, individually and as a couple. A lot of carers suffer in silence, physically mentally and emotionally, feeling totally helpless, afraid and alone. People diagnosed with Pulmonary Fibrosis tend to become depressed, and lock themselves away, in their homes, no longer feeling a useful part of society. Watch this video and listen to how Clive and Sue have learned, as a loving and devoted couple, to overcome these difficulties, continuing to seek the positives out of the remaining life they have together. In addition to all this Clive and Sue set up the Tameside Pulmonary Fibrosis Support Group which has over 40 members. It is both an honour and privilege, to know and work along side them.

This is a truly inspirational video presented by Louise Wright CEO of the National Charity Action for Pulmonary Fibrosis. Despite the turmoil of the past 15 months brought about by the COVID-19 pandemic APF been able to implement, launch and support many great projects and services in the quest to find a cure for the devastating lung disease Idiopathic Pulmonary Fibrosis. Whilst a cure is being sought the APF team has been working tirelessly to promote awareness of Pulmonary Fibrosis but support those people living with terminal disease, which has a life expectancy of 3-5 yrs , their families, friends and carers. These tremendous achievements have been supported by 70 support groups like ours across the United Kingdom. As Chairman of our group it is an honour and a privilege to work along side a truly dedicated, focused, extremely knowledgeable professionals that makes up the Action for Pulmonary Fibrosis team. By watching the video you will fully understand what I mean

Many people are prescribed Home Oxygen Therapy due to a chest condition such as Pulmonary Fibrosis Asthma, COPD, etc. What are the benefits of the use of oxygen for you, how can it improve your daily life, your overall well-being? in this video, these questions are answered along with many more. Listen to people who use oxygen on a daily basis and what life-changing differences it has made for them

Dr. Shaf Keshavjee is a world-renowned thoracic surgeon-scientist with a history of breakthroughs and discoveries in lung transplantation. He is the current Surgeon-in-Chief of the Sprott Department of Surgery, the Director of the Toronto Lung Transplant Program and Latner Thoracic Research Laboratories at UHN, and Professor of Thoracic Surgery at the University of Toronto. Dr. Keshavjee completed his medical training at the University of Toronto in 1985, and specialized in General Surgery, Cardiac Surgery and Thoracic Surgery. He participated in the world’s first successful double lung transplant at Toronto General Hospital in 1986. Dr. Keshavjee completed fellowships at Harvard University and the University of London. During his Master’s studies, Dr. Keshavjee developed a lung preservation solution for donor lungs that has now been translated into clinical use around the world. Since then, he has led the development and translation of many innovations to the clinic, including the Ex Vivo Lung Perfusion (EVLP) system. For Dr. Keshavjee’s achievements and leadership in the field, he has been appointed as an Officer of the Order of Canada, the country’s highest civilian honour that recognizes outstanding achievement, dedication to the community and service to the nation. Furthermore, he is a member of the Order of Ontario and has been awarded two Queen Elizabeth II Diamond Jubilee Medals. In 2020, he received the prestigious Governor General of Canada’s Innovation Award. Other notable recognitions include UHN's Inventor of the Year Award, Canada’s Top 40 Under 40, and the Lifetime Achievement Award from the Canadian Society of Transplantation.

Aerobika* Oscillating Positive Expiratory Pressure Device The Aerobika* Oscillating Positive Expiratory Pressure (OPEP) device is a drug-free, easy to use, hand-held device with a proprietary pressure-oscillation dynamic that provides intermittent resistance, creating positive pressure oscillations during patient exhalation. The Aerobika* device can assist with opening weak or collapsed airways and can help to thin and loosen mucus, enabling it to move to the larger airways of your lungs, where it can be coughed out.

Watch this animation of mucus congestion being actively being cleared from the airway passages of the lungs, with the aide of the Aerobila Device

Energy conservation is a means of adapting the way you carry out your day-to-day activities, at work, rest and play. It also allows you to assess and adapt the environment in which you conduct these activities. Everything we do from waking up to going to bed is classed as an activity and uses some form of energy. Senior Occupational Therapist Chloe Rattray a member of the Respiratory Team at Bolton NHS Trust. In this video we are reminded how important it is to conserve and manage our energy, day to day, particularly when you have a debilitating respiratory disease. Chloe describes every day tasks that we do and take for granted, without realising just how much energy we use to complete that task. Learn how to organise your day and the tasks that you perform throughout that day to manage and conserve your energy

Many patients experiencing stress from illness or injury have experienced a loss of sense of control and/or the inability to predict future events. Occupational therapists can work to promote an internal sense of control and improve predictability of events. In this video, Chloe Rattray Occupational Therapist and member of the Royal Bolton NHS Trust, Pulmonary Rehab Team,. Chloe explains what it is, its causes, its effects. She goes on to discuss ways and methods to help you to recognise the symptoms , techniques to help you overcome the effects of your anxiety. Through these you will learn how to manage and control your breathlessness and breathing long term.

This Webinar on the Impact of COVID 19 on long term respiratory health is hosted and presented by Eammon Costello CEO patientMpower Dublin Ireland. Professor Gisli Jenkins Faculty of Medicine, National Heart & Lung Institute Margaret Turner Warwick Chair of Thoracic Medicine Imperial College London

Being told by your consultant that you have Pulmonary Fibrosis, a condition you and others have probably never heard of before. It is only when one starts searching the internet one discovers the seriousness condition. This video takes you on a well known journey, that many people with Pulmonary Fibrosis have travelled and experienced. Starting with a simple cough several visits to the doctor, several courses of antibiotics, x-rays then eventually seen by a Respiratory Consultant, who eventually gives you the diagnosis of Pulmonary Fibrosis This video takes you on that journey that you will recognise but goes on to discuss and answer the questions all of use wanted to ask but didn't know who to ask.

Transbronchial Lung Cryobiopsy in Idiopathic Pulmonary Fibrosis Idiopathic pulmonary fibrosis (IPF) is a progressive lung disease associated with significant morbidity and mortality. The diagnosis of IPF involves a combination of clinical history, radiological imaging and examination of histopathological samples in appropriate cases. Historically, transbronchial biopsy (TBB) has been used to obtain histological samples; however this lacks diagnostic accuracy. At present, surgical lung biopsy (SLB) is the gold standard technique for obtaining specimen samples; however this carries a significant mortality risk. Transbronchial lung cryobiopsy (TBLC) is a new technique that has been pioneered in the management of lung malignancy and offers a potential alternative to SLB. The technique employs a freezing probe, which is used to obtain lung tissue samples that are larger and better quality than traditional TBB samples. Breath biomarkers in idiopathic pulmonary fibrosis: a systematic review BACKGROUND: Exhaled biomarkers may be related to disease processes in idiopathic pulmonary fibrosis (IPF) however their clinical role remains unclear. We performed a systematic review to investigate whether breath biomarkers discriminate between patients with IPF and healthy controls. We also assessed correlation with lung function, ability to distinguish diagnostic subgroups and change in response to treatment.