About Support Group

Preliminary Meeting Venue for the support group

Bolton Pulmonary Fibrosis Support Group …

There is very little information available about Idiopathic Pulmonary Fibrosis (IPF) especially for those newly diagnosed. The Bolton Pulmonary Fibrosis Support Group was setup by men and women who have Idiopathic Pulmonary Fibrosis themselves, some are on the register waiting for a Lung Transplant. They along with their family members, friends and carers have first hand knowledge of the condition, how it affects them; their daily lives their families. They have come together as a group to provide support, help and understanding to others with this incurable debilitating condition.

The founding members were the first group to be invited to the newly funded Idiopathic Pulmonary Fibrosis rehabilitation course, which started in September 2017 and continued over a period of eight weeks. The course was very informative about Idiopathic Pulmonary Fibrosis, how its affects individuals, how it is diagnosed and managed. Different ways to adapt to life, living with this, at present, incurable condition, what help is available with regards to support, self help etc. From day one  every one in the group got on so well, that the support for each other, the fun, banter and laughter just continued to grow. At the end of the eight weeks, we all said what are we going to do each Monday and Thursday, now that the course has come to an end, we must all keep in touch.

It was then that Michaela, one of the specialist respiratory nurses, introduced us to Lorna McLaughlan from the charity Action for Pulmonary Fibrosis. Lorna came up with perfect solution to allow us to remain together as a group and that was to set up a support group of our own, affiliated to Action for Pulmonary Fibrosis, as they say the rest is history, Bolton Pulmonary Fibrosis Support Group was born.

Action for Pulmonary Fibrosis

Great Team

Here are some of the Royal Bolton Hospital Consultants Physiotherapists,Nursing Staff who are the Medical Support Team of the Bolton Pulmonary Fibrosis Support Group

Helen Morris Wythenshawe Hospital

Helen Morris Wythenshawe Hospital

Helen Morris Interstitial Lung Disease specialist nurse at UHSM Wythenshawe Hospital

Helen Morris is an Interstitial Lung Disease specialist nurse at UHSM. Wythenshawe Hospital She graduated from the University of Salford with a nursing diploma in 1998. She worked at University Hospital South Manchester in acute medicine on a general medical ward and a medical assessment unit. She developed an interest in respiratory medicine during this time and began work on the acute respiratory wards at UHSM in 2001 as a senior staff nurse. She studied for her degree whilst working on the respiratory wards and became ward sister.

Tom Allerton Physio Therapist

Tom Allerton

Specialist Respiratory Physiotherapist and Principal Service Lead - Urgent Care Therapies at Royal Bolton Hospital

Specialist Respiratory Physiotherapist and Principal Service Lead - Urgent Care Therapies at Royal Bolton Hospital

This is a picture of Dr Kamal Ibrahim

Dr. Kamal Ibrahim

Consultant Respiratory Physician - Department of Respiratory Medicine, - Royal Bolton Hospital

Professional Background Dr Kamal Ibrahim trained at the University of Khartoum and joined Bolton NHS Foundation Trust in 2007. Previously, he has trained at hospitals in the North West and Yorkshire, the London Chest Hospital, the Royal London, St Bartholomew's and the University College of London Hospital. Dr Ibrahim is Bolton NHS FT Lead for COPD and pulmonary rehabilitation as well as pleural diseases. Special Interests and Research Special interests include: COPD (chronic obstructive pulmonary disease) and pleural diseases - including pleural ultrasound and more recently medical thoracoscopy which is currently performed by only a few hospitals in the North West region. Research interests include: Anaemia in COPD Publications Dr Kamal Ibrahim has invented and patented a new chest drain system for which he received a British Medical Association award in 2005.

Dr Raza Respiratory Consultant

Dr. Saiyyid Raza

Consultant Respiratory Physician - Department of Respiratory Medicine, - Royal Bolton Hospital

Professional Background Dr Raza gained an MBBS in Pakistan at the Punjab University. He then carried out his postgraduate medical training in Pakistan and the UK. He passed the MRCP (UK) examination in 1986 and then carried out research in the Occupational Lung Disease Unit, Wythenshawe Hospital and submitted his thesis for award of MSc from Manchester University. Higher medical training was carried out in Respiratory Medicine Units in the Northwest. Dr Raza took up his consultant post at Bolton NHS Foundation Trust in 2002. Subsequently he was awarded Fellowship of the Royal College of Physicians of London (FRCP). He is a professional member of the British Medical Association, the British Thoracic Society and the Medical Defence Union. Special Interests and Research Dr Raza has a special interest in interstitial lung disease and conducted research into occupational lung disease.